Print Edition | Spring - Summer 2016

Stefano was born with Congenital Central Hypoventilation Syndrome (CCHS). Ac­cording to the CCHS Family Network, this is a multisystem disorder of the central ner­vous system where, most dramatically, the automatic control of breathing is absent or impaired. A CCHS patient’s respiratory re­sponse to low blood oxygen saturation or to carbon dioxide retention is sluggish during awake hours and absent to varying degrees during sleep, serious illness, and/or stress.

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